The Photo That Shows My Everyday Life With an Invisible Illness | The Mighty ** shared 

What I would like to say…

There are many photos I wish I could post about my condition. I want people to understand what it’s like to be chronically ill – to have deep fatigue, brain fog, aches, pains, depression, and a myriad of other symptoms that you have to push aside each day. I put on a smile to hide my weariness that words can’t really describe.

“My illness is invisible, which is both a blessing and a curse. An invisible illness, meaning one that ordinary people wouldn’t realize based on your appearance and lifestyle, is a blessing because I can have moments where I pretend to be “normal” and have a regular, healthy life like so many people take for granted. But on the other hand, an invisible illness is also a curse because it becomes so much harder to explain to people about my condition and harder for them to understand that I truly don’t feel well.”

For more of this article, please continue…

How Are Lyme Disease and AIDS Alike? ** editorial/reblog

““Besides Acquired Immunodeficiency Syndrome (AIDS), Lyme disease is now the most important “new” disease facing us today.”

“Let that just simmer for a moment. “Most important.”

“The above quote is taken from an unclassified scientific report conducted by our military. The report is titled, TICKS AND TICKBORNE DISEASES AFFECTING MILITARY PERSONNEL. Written in September 1989, this report is ” Approved for public release; distribution is unlimited. Conducted by Jerome Goddard, Ph.D. Medical Entomology Section, Epidemiology Division, USAF School of Aerospace Medicine, Human Systems Division (AFSC) Brooks Air Force Base, Texas 78235-5301.”

See also, recent article by Dr Robert Bransfield,


Read Between The Lyme

Since I have some time to do more research right now and the motivation to do so, I have been digging into the aspects of the Lyme controversy in our country (USA).  I have been seeing many posts and articles recently that in some way or another compare Lyme disease and its prevalence to that of several aspects of AIDS epidemic here in the USA. As a young 10-20 year old growing up throughout these crisis years, the epidemic was not only the insanely tragic, it was a completely mishandled disease from the start, and ignored way too long by the science and medical fields, think CDC, think Infectious Disease Society of America, think NIH, and on and on, thus costing thousands upon thousands of lives.  I just wasn’t so sure that comparing these 2 epidemics would work logically.

But what are some reasons I thought this analogy wouldn’t work?…

View original post 1,097 more words

“If I Only Had a Brain”….. ** reblog



Read Between The Lyme

So, The Wizard of Oz and Lyme…….

Say what?  Ok, just work with me here…..

Lyme bacteria can enter every single system in the body. Every. Single. System. 

This summer, I’ve been experiencing some really great days, in a row!!!, and then I’ve also experiencing symptoms that come and go, day to day, and sometimes, hour to hour. I think I’m noticing it more because I am off of work right now. I’m not sure. 

I’ve been wracking my brain to think of a way to explain the comings and goings of the myriad of symptoms. There really isn’t a good analogy. Not one that is really accurate nor one that people can relate to, at least not one I’ve thought of!

But I woke up the other morning so freaking stiff I could barely get out of bed. For reals. And I thought, man, I need some of that…

View original post 267 more words

You can’t make someone love you, and other truths we pretend are not true. ** editorial/reblog

This is so true.

I hope my kaboom person with an affinity for my quirks and kinks is out there.

To lovers and dreamers everywhere, I share…

Love Tarot For Beginners

The Lovers and The Tower Life Changing Awesome or a Really Bad Time? Could be either! Whee!

There is a very pervasive and understandably appealing idea that you can, though sheer force of will and possibly specialized, targeted, frankly manipulative behavior, win the heart of someone who might otherwise not give you the time of day.

It is a comforting thought. If you only make all your reasonable needs teeny teeny tiny, and just Become the Magical Mate of Their Dreams, they will drop their defenses or apathy and just perk right up and be awesome to you.

Then they will love you, and commit, and you will be so happy, and all the hard work you did landing that fish will be so worth it, because LOVE.

This is something akin to putting on a very elaborate costume for a date, having the date go swimmingly, and then realizing if you want…

View original post 802 more words

I Used to Be a Writer—Then I Got Sick | Literary Hub ** editorial/shared

Though I was not a writer, I mourn who I was. Bad day today. Thank you, mom, for sending me this article, it helped balance me this morning. 

Two excerpts:

I have not yet learned anything except that I don’t want this, but also that I am this—I am illness just as much as woman, wife, friend, daughter, guardian of two mutts. And because, right now, I am illness—because I have not, as other people promise I will, learned to have a malady rather than be one—it is all I can manage to write about. I am a body in every moment, and my body is all I can think about….

Pain makes us absolutely self-centered, not in the malignant way of a narcissist, but in the inevitable way of an infant. Pain refuses to allow us to forget our bodies or to amputate them from our selves. Pain’s shrill cry will rise up, louder and louder, if we try to shut it out. Now, I often marvel that anyone is alive at all. There are so many things that can go wrong.”

Please read the full essay: