This Is How I Save My Life: From California to India, a True Story Of Finding Everything When You Are Willing To Try Anything by Amy B. Scher
My rating: 5 of 5 stars
Thank you to GoodReads, the author Amy B. Scher, and @Gallery Books / Simon & Schuster for this Advanced Readers Copy to review.
Over the years, several people have told me I should write about my journey with Lyme disease and chronic illness. Now I don’t need to, Amy Scher has told a story that mirrors mine, except I’m hoping to try stem cell therapy in the next year or two; it’s something I’ve been researching since I was first disabled in 2009. Almost ten years later, I’m almost ready to try it, and this book comes out. Synchronicity.
What she writes could be a page out of my life (pg 163):
“I could never do what you are doing.”
Honestly, I’m no superhero. You could totally rock this too, if you had to. In fact, we could all do anything if we absolutely had to. I once thought I could never do what I’m doing either, except for now I don’t have a choice and that’s exactly how I’m doing it in the first place. Some nights when I go to bed, I think to myself ‘I cannot do this, not for one more day.’ Eventually I fall asleep…and then…I wake up with a life that is just waiting for me to wade through all over again. You do it because even when — especially when — you think you can’t you’re somehow still making it happen. And you do it every minute of every day — no breaks allowed — because if you don’t every single thing that you’ve barely been holding on to might fall apart too.
The writing in this book is outstanding. The honesty is heart wrenching.
I’m done, because I don’t have the energy to type any longer.
If you’re chronically ill, or know someone who is chronically ill, you should read this book. If you have Lyme disease, this is a must.
View all my reviews
What I would like to say…
“There are many photos I wish I could post about my condition. I want people to understand what it’s like to be chronically ill – to have deep fatigue, brain fog, aches, pains, depression, and a myriad of other symptoms that you have to push aside each day. I put on a smile to hide my weariness that words can’t really describe.
“My illness is invisible, which is both a blessing and a curse. An invisible illness, meaning one that ordinary people wouldn’t realize based on your appearance and lifestyle, is a blessing because I can have moments where I pretend to be “normal” and have a regular, healthy life like so many people take for granted. But on the other hand, an invisible illness is also a curse because it becomes so much harder to explain to people about my condition and harder for them to understand that I truly don’t feel well.”
For more of this article, please continue…
Transportation is $6 roundtrip, 2xs a week, every week (exact change $3 each trip)= $48 a month.
If you donate even one dollar, you are helping me get to and from the hospital for treatment or to appointments with specialists.
Thank you very much.
I’m going to attempt to share my YouCaring.com update here…
If everyone who visited this post donated a dollar, I would be able to pay my overdue and upcoming medical bills.
I’m so befuddled by this an drowning, I’m starting to get a migraine.